North East Lincolnshire Parent Participation Forum
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NELPPF CO-PRODUCTION CHARTER NELPPF Charter 2018

Guidance & template letter for social care assessment for your disabled child. Challenging a refusal to assess your disabled child for specialist services. Every Disabled Child Matters, in association with Irwin Mitchell Solicitors, has created a template letter to help families with disabled children to gain an assessment for social care services.

This letter is intended to help parents who have been told that their council will not assess their disabled child in relation to short breaks or any other specialist social care service.

The law says that councils must assess every child who is or may be a child ‘in need’. Children are ‘in need’ if they are ‘disabled’. Therefore, it is unlawful for a local authority to refuse an assessment for a disabled child.

The first step for a parent of a disabled child who needs short breaks, or other social care services, is to ask for an assessment. Parents should ask their social worker (if they have one) or the duty worker for the Disabled Children’s Team (or equivalent) if they will carry out the assessment. If the answer to a request for an assessment is ‘no’, then a version of this letter can be sent to explain the legal situation.

The letter, and an accompanying guide, has been written by Steve Broach, a barrister at Doughty Street Chambers and Alex Rook, Associate Solicitor at Irwin Mitchell, two lawyers who specialise in cases involving disabled children. This is intended as a general guide and does not replace legal advice on their specific case.

https://councilfordisabledchildren.org.uk/sites/default/files/field/attachemnt/challenging_a_refusal_to_assess_-_leaflet_and_letter2.pdf

 

Factsheet from Cerebra: Carers’ Assessments in England for parents/carers of children with a learning disability http://www.cerebra.org.uk/help-and-information/guides-for-parents/factsheet-carers-assessments-in-england-for-parents-carers-of-children-with-a-learning-disability/

North East Lincolnshire Parent Participation Forum: Health Pilot. Contact a Family and NHS England’s Parent Participation Project: a briefing for health colleagues http://www.nelppf.co.uk/wp-content/uploads/2015/09/22.-JULY-2015-2-NE-Lincs-PP-report-16-March-HEALTH-PILOT1.pdf

Local Government Ombudsman: Navigating school transport issues http://www.nelppf.co.uk/wp-content/uploads/2017/06/School-Transport-FINAL-FINAL.pdf

Commissioned by the Department of Health. The Lenehan Review https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/585376/Lenehan_Review_Report.pdf

Home to School Travel and Transport. Statutory guidance on making home-to-school travel arrangements for children and young people, and on promoting sustainable travel https://www.gov.uk/government/publications/home-to-school-travel-and-transport-guidance

North East Lincolnshire Home to School Transport Policy Including Pupils with Special Educational Needs and/or Disabilities (SEND) For the Academic Year 2017-2018 https://www.nelincs.gov.uk/wp-content/uploads/2015/12/Home-to-School-Transport-Policy-2017-2018.pdf

Rehab Recovery offers free advice and guidance for autistic people who suffer with an addiction to drugs or alcohol.  http://www.rehab-recovery.co.uk/ http://www.rehab-recovery.co.uk/counselling/autism.html

If you have a learning disability you can get extra support when visiting the doctor. To do so you need to join the learning disability register – which could also mean you can have a free Annual Health Check. Download the template letter to give to your GP https://www.mencap.org.uk/sites/default/files/2017-03/GP%20Access%20needs%20letter%20Final.pdf

Childcare Choices: New government website launched with funding information for parents and providers.The government is introducing new ways to help parents with childcare costs. Whether you have toddlers or teens, you could get support https://www.childcarechoices.gov.uk/

Kooth is a safe, confidential and non-stigmatized way for young people to receive free counselling, advice and support on-line. The website is staffed by fully trained and qualified counsellors and available until 10pm each night, and weekends from 6pm – 10pm, 365 days per year, it provides a much needed confidential and instant access service for young people aged 11-25 https://kooth.com/

North East Lincolnshire Council and North East Lincolnshire Clinical Commissioning Group  Future in Mind: Transformation Plan 2015 – 2020 https://www.nelincs.gov.uk/wp-content/uploads/2016/02/North-East-Lincolnshire-Future-in-Mind-Transformation-Plan-2015-2020.pdf

North East Lincolnshire Council Play Strategy – Refresh January 2016 https://www.nelincs.gov.uk/wp-content/uploads/2016/09/201601-NELincsPlayStrategyRefresh-FINAL.pdf

Newsletter Issue 5: senart-article

Newsletter Issue 5: hearing-vision-article

Newsletter Issue 5:  core-assets-article

Power in Numbers by NELPPF https://www.youtube.com/watch?v=onyh_u_Sp_c&feature=em-upload_owner

IPSEA – Independent Parental Special Education Advice https://www.ipsea.org.uk

Special Needs Jungle – information and advice www.specialneedsjungle.com

Contact a Family www.cafamily.org.uk

Council for Disabled Children www.councilfordisabledchildren.org.uk/…/support-for-parents-on-

Preparing for Adulthood www.preparingforadulthood.org.uk

National Network of Parent Carer Forums  www.nnpcf.org.uk

0-25 SEND Code of Practice  https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/398815/SEND_Code_of_Practice_January_2015.pdf

Children and Families Act 2014 http://www.legislation.gov.uk/ukpga/2014/6/contents/enacted

Care Act http://www.legislation.gov.uk/ukpga/2014/23/contents/enacted

Voices Together Advocacy Services, North East Lincolnshire http://www.cloverleaf-advocacy.co.uk/offices/north-east-lincolnshire

Reasonable Adjustments for Disabled Pupils: Guidance for Schools in England  https://www.equalityhumanrights.com/sites/default/files/reasonable_adjustments_for_disabled_pupils_1.pdf

Supporting pupils at school with medical conditions https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/484418/supporting-pupils-at-school-with-medical-conditions.pdf

Mental health and behaviour in schools  https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/508847/Mental_Health_and_Behaviour_-_advice_for_Schools_160316.pdf

0 to 25 SEND code of practice: a guide for health professionals  https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/502913/Health_Professional_Guide_to_the_Send_Code_of_Practice.pdf

Social care: guide to the 0 to 25 SEND code of practice  https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/348928/Social_care__guide_to_the_0_to_25_SEND_code_of_practice.pdf

Disabled Children: A Legal Handbook 2nd edition. Authors: Steve Broach, Luke Clements and Janet Read  http://www.councilfordisabledchildren.org.uk/resources/disabled-children-a-legal-handbook-2nd-edition

Max Card:Max Card – discounts for fostered and disabled children http://www.mymaxcard.co.uk/

Turn to Us https://www.turn2us.org.uk/

Citizen’s Advice Bureau https://www.citizensadvice.org.uk

Disability Living Allowance https://www.gov.uk/disability-living-allowance-children/overview

Personal Independence Payment https://www.gov.uk/pip/overview

Disability Rights www.disabilityrightsuk.org/disability-living-allowance-dla

North East Lincolnshire Local Offer https://www.nelincs.gov.uk/children-and-families/send-and-local-offer/

Carers Allowance https://www.gov.uk/carers-allowance

Motability www.motability.co.uk

National Autistic Society (NAS) www.autism.org.uk

Cerebral Palsy www.icps.org.uk www.cerebralpalsy.org

Down’s Syndrome Association www.downs-syndrome.org.uk

Dyspraxia https://www.dyspraxiafoundation.org.uk/about-dyspraxia

Epilepsy www.epilepsysociety.org.uk

FLAG: A vital resource for Special Needs Children and their families http://www.flaggrimsby.co.uk/

Scope www.scope.org.uk

Carers Support Service, Grimsby http://www.carerssupportcentre.com/north-east-lincolnshire/

The Royal College of Paediatrics and Child Health http://www.rcpch.ac.uk/

National Children’s Bureau http://www.ncb.org.uk/

Carers Trust https://www.carers.org/

Carers UK http://www.carersuk.org/

North East Lincolnshire SENDIASS  formerly known as Parent Partnership http://www.barnardos.org.uk/nelsendiass 

https://www.youtube.com/watch?v=0nyai8EPxqc&feature=youtu.be

https://www.youtube.com/watch?v=HLLsYwKyvB0&feature=youtu.be

The Children’s Sleep Charity http://www.thechildrenssleepcharity.org.uk/

Healthwatch North East Lincolnshire http://www.healthwatchnortheastlincolnshire.co.uk/

Future in mind: Promoting, protecting and improving our children and young people’s mental health and wellbeing https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/414024/Childrens_Mental_Health.pdf

Lightning Review: Access to Child and Adolescent Mental Health Services, May 2016  https://www.childrenscommissioner.gov.uk/publications/lightning-review-access-child-and-adolescent-mental-health-services

The Handbook to the NHS Constitution  https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/474450/NHS_Constitution_Handbook_v2.pdf

Grants http://mygrants.co.uk/grants-to-support-disabled-children/

Cerebra:  Problem-Solving Toolkit http://w3.cerebra.org.uk/help-and-information/guides-for-parents/problem-solving-toolkit/

Cerebra: Problem-Solving Toolkit for Families: Accessing Public Services Toolkit http://w3.cerebra.org.uk/help-and-information/guides-for-parents/problem-solving-toolkit/

Royal College of Practitioners: Safeguarding Children Toolkit for General Practice http://www.rcgp.org.uk/clinical-and-research/toolkits/the-rcgp-nspcc-safeguarding-children-toolkit-for-general-practice.aspx

The GP Champion’s Project. What Every GP Practice can do to Improve Young People’s Health: http://www.youngpeopleshealth.org.uk/wp-content/uploads/2015/06/GPToolkit_ONLINE.pdf

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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